Kathryn A. Sabadosa, MPH, Director of Quality Improvement and Innovation, Cystic Fibrosis (CF) Foundation, founded by people with CF and their families
Kathryn directs the CF Learning Network and the Learning & Leadership Collaborative, two communities for healthcare professionals, individuals with CF, and parents that test innovations in care delivery. She leads a national survey to capture and report the patient and family experience of care and disseminates the findings and quality improvement resources to 268 foundation-accredited programs in the US.
Kathy served as the senior research director for the Robert Wood Johnson Foundation Co-production of CF Care Pilot Program and as a research associate for the Northern New England Cardiovascular Disease Study Group at The Dartmouth Institute for Health Policy & Clinical Practice. She has also been an analyst and programmer at Tufts Health Plans, Harvard Pilgrim Health Care, and Blue Cross Blue Shield of Vermont. Kathy started her public health career with the Peace Corps as an associate director of maternal and child health programs in the Central African Republic and Chad. Kathy is a parent of an adult with CF
Kathy is a guest on "Episode 1, Coproducton is Everywhere"
David C. Leach, MD, former Executive Director of the Accreditation Council for Graduate Medical Education (ACGME)
David is interested in improving healthcare by improving the formation of health professionals. As the former Executive Director of the Accreditation Council for Graduate Medical Education (ACGME), he led the development of the “General Competencies” for all medical specialties and their related graduate-level training programs in the U.S. The competencies are Patient Care, Medical Knowledge, Practice-based Learning & Improvement, Interpersonal and Communication Skills, Professionalism, Systems-based Practice. This included the development of the practical meaning of these competencies for their medical specialty.
Earlier, David practiced medicine as an Internal Medical and Clinical Endocrinology specialist at the Henry Ford Health Care System in Detroit, Michigan, U.S. He also served as the Director of Education and as the residency program director in Internal Medicine for the Henry Ford system. David has served as a member of several governing boards of health-related organizations and is currently retired
David is a guest on Episode 1, "Coproduction is everywhere"
Charlotte (Lotta) Arvidsson, family physician and medical educator for Region Jönköping, Sweden
Professionally prepared as a cardiologist, Lotta has completed the additional specialty qualification as a primary care practitioner. She works as a primary healthcare professional in Region Jönköping, Sweden, and has participated in learning communities of practice for health professionals to learn how to coproduce health care. Lotta brings these insights into her daily work as a primary care practitioner and her work with a Swedish national effort to establish national guidelines for better health for people who live with heart failure. In addition, she leads the learning of Jönköping medical specialists in their ongoing efforts to gain knowledge to improve the quality and safety of healthcare.
As a participant in the first pilot group of junior doctors to work with learning partners, Lotta has gained additional insights into the lived reality of persons we sometimes call patients, and has realized the benefits of making changes to her own practice.
Lotta is a guest on Episode 2, "The person will see you now"
Serena Chao, MD, Chief of Geriatrics Division,Cambridge Health Alliance (CHA), Director of CHA’s House Calls Program, Co-Chair of CHA’s Post-Acute Committee and Instructor of Medicine,Harvard Medical School
Serena Chao has extensive experience creating geriatrics curricula for medical students, residents and fellows. Awarded a HRSA-funded Geriatric Academic Career Award in 2007, she was a core faculty member in the design and implementation of the Boston Medical Center (BMC) Chief Resident Immersion Training (CRIT) in Geriatrics. This interactive program for rising chief medical and subspecialty residents has been replicated in at least 33 other U.S. institutions. From 2009-2015, Serena directed the BMC/BUSM Geriatric Medicine Fellowship Program and was the principal investigator of BMC’s HRSA-funded Geriatric Training Program for Physicians, Dentists, and Behavioral and Mental Health Professions. As a working group member in 2014, she helped develop milestones and evaluation tools to assess fellows’ emerging competencies in geriatric medicine. Serena was chosen as a Fellow of the American Geriatrics Society in May 2018.
She has first-hand knowledge of the ‘coproduction of healthcare service’ and wants to help others learn what she has found useful in her own work.
Serena is a guest on Episode 2, "The person will see you now"
PhD, MPH,Professor, Department of Surgery and the Center for Health Services Outcomes Research, Northwestern University
Julie Johnson has lived and worked in North America, Australia and Europe improving the quality and safety of patient care within clinical microsystems. At Northwestern University, Julie is the Associate Director of Evaluation for the Illinois Surgical Quality Improvement Collaborative (ISQIC) where she has used implementation science, improvement science and qualitative research methodologies to evaluate a 56-hospital learning collaborative to improve surgical outcomes. Julie teaches in Northwestern’s Institute for Public Health and Medicine in the Master’s in Health Services Outcomes Research (Applied Qualitative Research Methods) and in the Master’s in Quality and Patient Safety (Fundamental Methods for Quality Improvement).
She mentors and supports junior faculty and research fellows using qualitative methods to assess and improve clinical microsystems.
Julie is the spouse of a person with newly diagnosed cancer and speaks with Paul about coproduction from that perspective.
Julie is a guest on Episode 3, "Let's get real: the way things are"
M.Ed, Career Advisor to Undergraduates, Dartmouth College
Chandlee Bryan is a career coach and patient advocate who enjoys carefully listening to people, exploring resource options, and helping people introduce themselves to the world with all that they are.
Since 2012, she has worked as a career advisor at Dartmouth College, facilitating workshops and working with students to help them identify and pursue meaningful opportunities. She has also worked as a writer, job search group facilitator, and a recruiter. Diagnosed with Multiple Sclerosis in 2013, Chandlee is a student in the Guarini School of Graduate Studies at Dartmouth College; her interests include narrative medicine, creative writing, and healthcare co-production. Chandlee is co-facilitator of a National MS Society Support group, a peer mentor with the Concord Hospital MSF Wellness Program, and a member of the Co-Value study research initiative run through the International Coproduction of Health Network.
She speaks with Paul from her experience communicating about MS.
Chandlee is a guest on Episode 3, "Let's get real: the way things are"
Professor, Rehabilitation Research, St George’s University of London and Kingston University. Founder and CEO, Bridges Self-Management Limited
Since developing Bridges, Fiona Jones has studied self-management support for people with acquired brain injury & long-term neurological conditions and professional factors influencing sustainability of programme use within rehabilitation. Fiona has published on self-management & self-efficacy, and supervises doctoral students in the UK and Sweden who study self-management. Fiona was Chief Investigator for ‘CREATE', completed in 2020, and used Experience-Based Co-Design to increase therapeutic activity in stroke units. In 2009 Fiona received the life after stroke award for excellence from the UK Stroke Association. In 2011 she was made a Fellow of the Chartered Society of Physiotherapists and was President of the UK Association of Physiotherapists in Neurology from 2013-2017. She received a MBE award for services to stroke rehabilitation in the Queen’s Birthday Honours list in 2017.
Fiona speaks with Paul from her experience fostering support for self-care by health professionals.
Fiona Jones is a guest on Episode 4, "Allow me to empower you: the power of self-care"
CNM, MS, Nurse-Midwife & Director of Perinatal Care,Minnesota Community Care (MCC), St. Paul, Minnesota
Sonja Batalden Co-Directs DIVA (Dynamic, involved, Valued, African-American) Moms at MCC, a group of Federally Qualified Health Centers (FQHC) with 17 clinical sites, providing primary care services to populations in neighborhood health centers, housing projects, homeless shelters and high schools. DIVA Moms addresses inequities in birth outcomes for Black mothers and children. Prior to midwifery training at University of California San Francisco (UCSF), Sonja worked in Adolescent Foster Care and directed a Robert Wood Johnson grant for homeless families. Sonja has practiced midwifery in public health settings at Emory University Grady Hospital in Atlanta, Yale Faculty Practice, Yale New Haven Hospital Women’s Center, and at MCC. After years focused on intrapartum clinical teaching, her current focus is shaping innovative models of care for community and cultural needs among diverse populations. Sonja was a fellow in the Duke-Johnson & Johnson Nurse Leadership Program focused on funding of comprehensive perinatal services in the FQHC setting.
Sonja speaks with Paul about her program development experience with DIVA Moms.
DNP, APRN, CNM, M.S.,Social Architect and Nurse-Midwife Health Consultant
With over 19 years of experience in maternity care and women's health, Diane Banigo passionately supports people from all walks of life. Dr. Banigo champions systemic equity with a particular interest in fostering socially safe, harm-free, and culturally congruent care in communities with the worst birth-related disparities and racialized lived experiences. She has helped 100’s of women give birth and has worked as a program developer & reflective bridge builder to advance women’s self-worth and gratitude. Diane has helped a wide variety of organizations in diverse settings. In addition, she founded and leads Ignited Face of Beauty (iFOB) Consulting, an organization that fosters collaborative work to design and implement culturally responsive and inclusive solutions aimed at narrowing disparities and modeling equity.
Diane speaks with Paul about her experience creating the DIVA Moms program in St. Paul, Minnesota
M.D., MMM, Chief Medical Officer and Executive Vice President, Cystic Fibrosis (CF) Foundation
Bruce Marshall’s senior role at CF Foundation includes leadership of the care center network, overseeing quality improvement, clinical practice guidelines, the patient registry and educational resources.
From 1988 to 2002, Bruce was Director of a leading Adult CF program at Utah University School of Medicine. His research interests have centered on CF epidemiologic and clinical studies, including use of survival models for assessing the impact of lung transplantation, and chronic azithromycin in CF treatment. Before joining the CF Foundation, Bruce was an Associate Professor at the Utah School of Medicine.
Bruce earned his BA at Johns Hopkins University and his MD at the University of Maryland School of Medicine. He trained in internal medicine at Strong Memorial Hospital, University of Rochester, and as part of a pulmonary fellowship at the Boston University School of Medicine. He also holds a Master’s Degree in Medical Management from Carnegie Mellon University. Bruce is board certified in Internal Medicine and Pulmonary Disease.
Bruce speaks with Paul about the development of biologic knowledge in CF.
Project Manager, European Patients’ Academy on Therapeutic Innovation (EUPATI) Sweden, Swedish Disability Rights Federation and Facilitator-in-Preparation, Center for Courage and Renewal
Moved by experience parenting a child with multiple chronic conditions, Cristin Lind has worked to improve health and healthcare since 2011 through her support of patients, families, professionals, and other stakeholders who collaborate to develop health and care.
Originally from the US, Cristin has supported clinical improvement teams within her family’s own healthcare system, the Cambridge Health Alliance,been faculty for regional improvement collaboratives, and a national advisor for the US National Academy of Medicine and the National Institute for Children’s Health & Healthcare Quality (NICHQ). Since moving to Sweden with her family in 2013, Cristin has continued to support patient-professional partnerships, and is currently at the Swedish Disability Rights Association. She is also passionate about creating spaces where changemakers & leaders can do the inner work that allows them to lead with integrity and is currently a facilitator-in-preparation with the Center for Courage & Renewal.
Cristin speaks with Paul about building knowledge of the experience of living with a long-term condition.
University Professor of Global and Migrant Health, University of Southern Denmark. Senior Consultant, The Migrant Health Clinic, Odense University Hospital
A teacher, researcher, debater, and presenter, Morten is employed as the chief physician and clinical professor at the immigrant medicine clinic, which he helped develop in 2008. He received the 2021 Danish Public Health Award for his work with vulnerable people.
Morten and his colleagues have recognized several themes in the healthcare services they co-create: 1) doing what makes sense to the patient-person and professional-person; 2) sorting the often-present chaos; 3) when everything seems to fail, listen even more carefully to the patient-person; 4) in continuity, be willing to become part of the patient-person’s story.
As Morten writes, “We love to blame the strangers, the poor, and the short educated for epidemics. But that is neither fair nor correct. It is not the culture of minorities that is the problem. It is the majority's cultural acceptance of inequality in health as an expression of a weak character that is the problem.”
Morten describes how he works with immigrant-persons to co-create healthcare services.
Morten is a guest on Episode 8, "Am I allowed to cry here?"
MD, Dorothy and John J. Byrne, Jr. Distinguished Professor and Chief of Palliative Medicine, Geisel School of Medicine and Dartmouth-Hitchcock Health
To prepare clinicians for the co-design and delivery of empathic, effective healthcare, and to facilitate joy in work, Kathryn integrates narrative medicine into teaching medical students, residents, fellows, faculty, and healthcare teams. She also helps facilitate cross-disciplinary activities with colleagues at Dartmouth College. Kathryn’s interests include the role and mechanisms of narrative practices, such as close reading and creative writing. She is actively involved in the Promise Partnership, a collaboration between The Dartmouth Institute, Dartmouth-Hitchcock, and the Norris Cotton Cancer Center, designed to create a learning health system based on coproduction principles for patients with serious illness.
Kathryn tells Paul how she uses stories to bring many streams of knowledge together in the care of people with serious illness.
Kathryin is a guest on Episode 9, "Stories clarify"
MD, General Practitioner, Ballyhale Health Centre, Co. Kilkenny, Ireland
John was awarded a Diploma in Quality Improvement in Healthcare and Patient Safety from the Royal College of Physicians of Ireland (RCPI) in 2017.
He served as Quality Improvement Scholar in Residence with the RCPI and the International Society for Quality in Healthcare (ISQua) in 2016/17.
As well as being an ISQua Fellow and Board Member, John currently works with the RCPI in designing and delivering Quality Improvement and Patient Safety education across a number of platforms, including in collaboration with the Health Service Executive.
John tells Paul how the settings he works in influences the work he is able to do.
John is a guest on Episode 10, "My work depends on the setting ..."
Professor of Learning and Director of the Centre for Real World Learning, Winchester University, UK
Bill’s research focuses on understanding dispositions for learning that help people succeed and flourish in life, including how these dispositions can be cultivated and made evidence-based. Bill co-chairs the strategic advisory group of the new PISA 2022 (Programme for International Student Assessment (PISA) is an international standardised education research study of 15-year-olds of Creative Thinking) and advises international bodies on education such as the State of Victoria in Australia, the OECD’s Centre for Educational Research and Innovation, and the LEGO Foundation.He is a founding member of the Rethinking Assessment movement.
Bill’s work in health and social care includes his part-time role as Director of Fellowship Learning for THIS Institute at Cambridge University. Previously he co-facilitated and initiated the Health Foundation’s improvement science fellowship scheme with Professor Paul Batalden. Bill’s Habits of an Improver model is increasingly used across the UK’s health systems.
Bill has authored more than eighty books and many research reports. In 2020 Bill co-authored the Durham Commission on Creativity and Education. His most recent report is Rethinking assessment in education: The case for change. His 2015 critique of the English education system, Educating Ruby: what our children really need to learn, written with Guy Claxton, asks challenging questions about the future direction of schools.
Bill discusses the pedagogy of coproduction with Paul.
Bill is a guest on Episode 11, "From principles to practices"
President and CEO for Southcentral Foundation’s two-time Malcolm Baldrige Award-winning Nuka System of Care
Kyle is of Athabascan descent.
SCF’s Nuka System of Care is a customer-owned system that provides health care and related services to approximately 65,000 Alaska Native and American Indian people. Nuka has earned national and international recognition for the quality of care it provides.
Most recently, Kyle served as Vice President of Behavioral Services which includes crisis, outpatient, integrated, collocated, day and residential program and services. Kyle received her master’s degree from the University of Washington Foster School of Business. In 2013 she was nominated by her peers and received the Top 40 Under 40 award from the Alaska Journal of Commerce, and 2014 completed the Alaska Pacific University Alaska Native Executive Leadership Program. Kyle is a mother and a customer-owner.
Kyle speaks nationally and internationally on various topics including whole system transformation, behavioral health, leadership, and innovation in the industry.
Vice President of Medical Services for Southcentral Foundation’s Malcolm Baldrige Award-winning Nuka System of Care
Doug is a physician executive who has done extensive work with the Institute for Healthcare Improvement and other organizations around the Triple Aim, Accountable Care Organizations (ACOs), Patient Centered Medical Homes, whole system transformation, workforce, cultural competency, health disparities, and other topics. His speaking and consulting includes work across the U.S., Canada, and portions of Europe and the South Pacific. Doug has spent more than 20 years working in support of Alaska Native leadership as they created a very innovative integrated system of care that has significantly improved health outcomes. Doug received his medical degree from the University of Cincinnati in Cincinnati, Ohio, and his master’s in public health degree from the University of Hawaii.
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