Ann-Christin Björklund is a PhD-student (50%) since 2017 at the Research School of Health and Welfare, Jönköping University. Ann-Christin is a pediatric nurse working part time as a Consultant Nurse for pediatric braintumors at Uppsala University hospital in Sweden.
This doctoral thesis has two aims. The first is to explore how the child´s problems with body function, activity performance and participation in everyday life in school-related activities, are documented in school and health care records and communicated between the family and professionals after ending braintumor treatment. The second aim is to explore if a structured supportive intervention based on collaborative problem solving (CPS) improves the child´s health and participation in school.
In Sweden about 80 children are diagnosed with a braintumor early. The treatment consists of surgery, chemotherapy and/or radiotherapy depending on tumortype. Most of the children survives but often experience difficulties in physical, psychosocial, and cognitive areas after the tumor and treatment. The need for a multi-professional follow up care is essential to detect what kind of support the child needs. It is also important for the staff involved in the child to document and communicate the child’s problems, needs and given support in a good way, to be able to support the child’s participation in school.
The thesis consists of four studies using various methodological approaches. When studying how the child’s problems, recommended, and received support are documented, qualitative data from journal documentation will be collected and linked to ICF-CY*, body function, activity, participation, and environmental factors. From the intervention where an experimental single-case multiple-baseline design will be used, questionnaires evaluating the intervention will be collected as well as interviews performed for the process evaluation.
* International classification of functioning, disability, and health: children and youth version: ICF-CY.