Karina Huus

Professor
Department of Nursing , School of Health and Welfare
Head of Discipline -
Research School of Health and Welfare , School of Health and Welfare
PhD
Programme Manager

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Karina Huus is a Pediatric Nurse, Professor in Nursing with a focus on children and young people, and programme manager for specialist nursing education at the nursing department. She is also responsible for the subject in the postgraduate education Disability Science.

Karina is a member of the interdisciplinary research environment CHILD at Jönköping University and she is an active researcher within the Institute for Disability Science, which is a collaboration between Jönköping University, Linköping University and Örebro University.

Karina's research is about children's health, children's rights and about children with disabilities and their participation in everyday activities. Karina collaborates with researchers from Sweden as well as several other countries such as South Africa, Australia, Canada, Portugal, China and Taiwan. The research groups in Sweden and South Africa have received funding from STINT to be able to strengthen cooperation and study participation in everyday life for children with disabilities and to be able to measure and compare the extent to which children with disabilities are involved in everyday activities at home, in school or in society. Participation is here both about being physically present in place for an activity, but also about being able to participate and be involved when you are actually there. This is not always the case when you have a disability.

Karina is also one of the researchers in the research program Mental health and participation in habilitation interventions for children and youth with disabilities: The program will investigate factors that affect participation with a focus on mental health and services offered to children with disabilities who have mental illness. Children will be followed longitudinally for 5 years, where researchers gather information prospectively. Children, parents and professionals work together to develop and evaluate methods for involving children and parents in the intervention process.

Article

Björk, M., Wahlqvist, M., Huus, K., Anderzén-Carlsson, A. (2022). The consequences of deafblindness rules the family: Parents’ lived experiences of family life when the other parent has deafblindness The British Journal of Visual Impairment, 40(1), 18-28. More information
Zheng, H., Bornman, J., Granlund, M., Zhao, Y., Huus, K. (2022). Participation of children with long-term health conditions compared to that of healthy peers: a cross-sectional comparative study. Scandinavian Journal of Occupational Therapy. More information
Huus, K., Sundqvist, A., Anderzén-Carlsson, A., Wahlqvist, M., Björk, M. (2022). Living an ordinary life - yet not: the everyday life of children and adolescents living with a parent with deafblindness International Journal of Qualitative Studies on Health and Well-being, 17(1). More information
Shi, L., Granlund, M., Zhao, Y., Hwang, A., Kang, L., Huus, K. (2021). Transcultural adaptation, content validity and reliability of the instrument 'Picture My Participation' for children and youth with and without intellectual disabilities in mainland China Scandinavian Journal of Occupational Therapy, 28(2), 147-157. More information
Huus, K., Schlebusch, L., Ramaahlo, M., Samuels, A., Gimbler Berglund, I., Dada, S. (2021). Barriers and facilitators to participation for children and adolescents with disabilities in low- and middle-income countries – A scoping review African Journal of Disability, 10, 1-10. More information
Lygnegård, F., Granlund, M., Kapetanovic, S., Augustine, L., Huus, K. (2021). Short-term longitudinal participation trajectories related to domestic life and peer relations for adolescents with and without self-reported neurodevelopmental impairments Heliyon, 7(4). More information
Arvidsson, P. Dada, S. Granlund, M. Imms, C. Shi, L. Kang, L. , ... Huus K. (2021). Structural validity and internal consistency of Picture My Participation: A measure for children with disability African Journal of Disability, 10. More information
Huus, K., Morwane, R., Ramaahlo, M., Balton, S., Pettersson, E., Gimbler Berglund, I., Dada, S. (2021). Voices of children with intellectual disabilities on participation in daily activities African Journal of Disability, 10, 1-9. More information
Enskär, K., Darcy, L., Björk, M., Knutsson, S., Huus, K. (2020). Experiences of young children with cancer and their parents with nurses' caring practices during the cancer trajectory Journal of Pediatric Oncology Nursing, 37(1), 21-34. More information
Dada, S., Andersson, A., May, A., Elgmark Andersson, E., Granlund, M., Huus, K. (2020). Agreement between participation ratings of children with intellectual disabilities and their primary caregivers Research in Developmental Disabilities, 104. More information
Olsson, L., Bengtsson, S., Granlund, M., Huus, K., Elgmark Andersson, E., Kåreholt, I. (2020). Social service utilisation in relation to class setting - a longitudinal study among children with mild intellectual disability in Sweden European Journal of Special Needs Education, 35(4), 544-558. More information
Arvidsson, P., Dada, S., Granlund, M., Imms, C., Bornman, J., Elliott, C., Huus, K. (2020). Content validity and usefulness of Picture My Participation for measuring participation in children with and without intellectual disability in South Africa and Sweden Scandinavian Journal of Occupational Therapy, 27(5), 336-348. More information
Samuels, A., Dada, S., Van Niekerk, K., Arvidsson, P., Huus, K. (2020). Children in south africa with and without intellectual disabilities’ rating of their frequency of participation in everyday activities International Journal of Environmental Research and Public Health, 17(18), 1-12. More information
Schlebusch, L., Huus, K., Samuels, A., Granlund, M., Dada, S. (2020). Participation of young people with disabilities and/or chronic conditions in low- and middle-income countries: a scoping review. More information
Lin, C., Imani, V., Broström, A., Huus, K., Björk, M., Hodges, E., Pakpour, A. (2020). Psychological distress and quality of life in Iranian adolescents with overweight/obesity: mediating roles of weight bias internalization and insomnia Eating and Weight Disorders, 25, 1583-1592. More information
Balton, S., Arvidsson, P., Granlund, M., Huus, K., Dada, S. (2020). Test-retest reliability of Picture My Participation in children with intellectual disability in South Africa Scandinavian Journal of Occupational Therapy. More information
Wahlqvist, M., Björk, M., Anderzén-Carlsson, A., Huus, K. (2020). Health-Related Quality of Life, Family Climate and Sense of Coherence of Families in Which a Parent Has Deafblindness Frontiers in Education, 5. More information
Møller Christensen, B., Björk, M., Almqvist, L., Huus, K. (2019). Patterns of support to adolescents related to disability, family situation, harassment, and economy Child Care Health and Development, 45(5), 644-653. More information
Lygnegård, F., Almqvist, L., Granlund, M., Huus, K. (2019). Participation profiles in domestic life and peer relations as experienced by adolescents with and without impairments and long-term health conditions Developmental Neurorehabilitation, 22(1), 27-38. More information
Lygnegård, F., Augustine, L., Granlund, M., Kåreholt, I., Huus, K. (2018). Factors Associated With Participation and Change Over Time in Domestic Life, Peer Relations, and School for Adolescents With and Without Self-Reported Neurodevelopmental Disorders. A Follow-Up Prospective Study Frontiers in Education, 3, 1-13. More information
Björkman, B., Gimbler Berglund, I., Enskär, K., Faresjö, M., Huus, K. (2017). Peri-radiographic guidelines for children with autism spectrum disorder: a nationwide survey in Sweden Child Care Health and Development, 43(1), 31-36. More information
Olsson, L., Elgmark Andersson, E., Granlund, M., Huus, K. (2017). Habilitation service utilization patterns among children with mild intellectual disability Journal of Policy and Practice in Intellectual Disabilities, 14(3), 233-239. More information
Björkman, B., Gimbler Berglund, I., Faresjö, M., Enskär, K., Huus, K. (2017). Are radiographers prepared to meet children with special needs, when seen for an examination? Acta Radiologica, 58(1 Suppl.), 16. More information
Petersson, C., Huus, K., Åkesson, K., Enskär, K., Golsäter, M. (2017). To promote child involvement – healthcare professionals' use of a health-related quality of life assessment tool during paediatric encounters European Journal for Person Centered Healthcare, 5(1). More information
Gimbler Berglund, I., Björkman, B., Enskär, K., Faresjö, M., Huus, K. (2017). Management of children with Autism Spectrum Disorder in the anesthesia and radiographic context Journal of Developmental and Behavioral Pediatrics, 38(3), 187-196. More information
Huus, K., Olsson, L., Elgmark Andersson, E., Granlund, M., Augustine, L. (2017). Perceived needs among parents of children with a mild intellectual disability in Sweden Scandinavian Journal of Disability Research, 19(4), 307-317. More information
Hasselberg, M., Huus, K., Golsäter, M. (2016). Breastfeeding preterm infants at a neonatal care unit in rural Tanzania Journal of Obstetric, Gynecologic and Neonatal Nursing, 45(6), 825-835. More information
Carlsson, E., Ludvigsson, J., Huus, K., Faresjö, M. (2016). High physical activity in young children suggests positive effects by altering autoantigen-induced immune activity Scandinavian Journal of Medicine and Science in Sports, 26(4), 441-450. More information
Petersson, C., Huus, K., Åkesson, K., Enskär, K. (2016). Children's experiences about a structured assessment of health-related quality of life during a patient encounter Child Care Health and Development, 42(3), 424-432. More information
Petersson, C., Huus, K., Enskär, K., Hanberger, L., Samulesson, U., Åkesson, K. (2016). Impact of type 1 diabetes on health-related quality of life among 8–18-year-old children , 39(4), 245-255. More information
Huus, K., Dada, S., Bornman, J., Lygnegård, F. (2016). The awareness of primary caregivers in South Africa of the human rights of their children with intellectual disabilities Child: Care, Health and Development, 42(6), 863-870. More information
Huus, K., Åkerman, L., Raustorp, A., Ludvigsson, J. (2016). Physical Activity, Blood Glucose and C-Peptide in Healthy School-Children, a Longitudinal Study PLOS ONE, 11(6). More information
Huus, K., Ngoc, L., Dam, K., Ljusegren, G., Enskär, K., Gimbler Berglund, I. (2016). Caring for children in pain: a Vietnamese perspective Annals of Nursing and Practice, 3(7). More information
Nilsson, S. Björkman, B. Almqvist, A. Almqvist, L. Björk-Willén, P. Donohue, D. , ... Hvit S. (2015). Children’s voices – Differentiating a child perspective from a child’s perspective Developmental Neurorehabilitation, 18(3), 162-168. More information
Olsson, L., Elgmark, E., Granlund, M., Huus, K. (2015). Social service utilisation patterns among children with mild intellectual disability – differences between children integrated into mainstream classes and children in self-contained classes European Journal of Special Needs Education, 30(2), 220-236. More information
Enskär, K., Huus, K., Björk, M., Granlund, M., Darcy, L., Knutsson, S. (2015). An analytic review of clinical implications from nursing and psychosocial research within Swedish pediatric oncology. More information
Huus, K., Granlund, M., Bornman, J., Lygnegård, F. (2015). Human rights of children with intellectual disabilities: comparing self-ratings and proxy ratings Child Care Health and Development, 41(6), 1010-1017. More information
Enskär, K., Björk, M., Knutsson, S., Granlund, M., Darcy, L., Huus, K. (2015). A Swedish perspective on nursing and psychosocial research in paediatric oncology: A literature review. More information
Petersson, C., Huus, K., Samuelsson, U., Hanberger, L., Akesson, K. (2015). Use of the national quality registry to monitor health-related quality of life of children with type 1 diabetes: A pilot study Journal of Child Health Care, 19(1), 30-42. More information
Darcy, L., Knutsson, S., Huus, K., Enskär, K. (2014). The everyday life of the young child shortly after receiving a cancer diagnosis, from both children's and parent's perspectives Cancer Nursing, 37(6), 445-456. More information
Enskär, K., Knutsson, S., Huus, K., Granlund, M., Darcy, L., Björk, M. (2014). A literature review of the results from nursing and psychosocial research within Swedish pediatric oncology. More information
Petersson, C., Simeonsson, R., Enskär, K., Huus, K. (2013). Comparing children's self-report instruments for health-related quality of life using the International Classification of Functioning, Disability and Health for Children and Youth (ICF-CY) Health and Quality of Life Outcomes, 11(1), 1-10. More information
Lygnegård, F., Donohue, D., Bornman, J., Granlund, M., Huus, K. (2013). A Systematic review of Generic and Special Needs of Children with Disabilities Living in Poverty Settings in Low- and Middle-Income Countries Journal of Policy Practice, 12(4), 296-315. More information
Wennick, A., Huus, K. (2012). What it is like being a sibling of a child newly diagnosed with type 1 diabetes: an interview study European Diabetes Nursing, 9(3), 88-92. More information
Huus, K., Castor, M., Rosander Ek, C., Enskär, K. (2012). Hur syskon påverkas av att ha en bror eller syster med diabetes - ett föräldraperspektiv Vård i Norden, 32(2), 41-45. More information
Enskär, K., Ankarcrona, E., Jörgense, A., Huus, K. (2012). Undocumented refugee children in Swedish healthcare: Nurses' knowledge concerning regulations and their attitudes about the care Vård i Norden, 32(1), 44-47. More information
Huus, K., Brekke, H., Ludvigsson, J., Ludvigsson, J. (2009). Relationship of food frequencies as reported by parents to overweight and obesity at 5 years Acta Paediatrica, 98(1), 139-143. More information
Huus, K., Ludvigsson, J., Enskär, K., Ludvigsson, J. (2008). Exclusive breastfeeding of Swedish children and its possible influence on the development of obesity: a prospective cohort study BMC Pediatrics, 8. More information
Huus, K., Enskär, K. (2007). Adolescents' experience of living with diabetes Paediatric Nursing, 19(3), 29-31. More information
Huus, K., Ludvigsson, J., Enskär, K., Ludvigsson, J. (2007). Risk factors in childhood obesity: findings from the All Babies In Southeast Sweden (ABIS) cohort Acta Paediatrica, 96(9), 1321-1325. More information
Ludvigsson, J., Huus, K., Eklöv, K., Klintström, R., Lahdenperä, A. (2007). Fasting plasma glucose levels in healthy preschool children: effects of weight and lifestyle. Acta Paediatrica, 96(5), 706-709. More information

Conference paper

Anderzén Carlsson, A., Wahlqvist, M., Huus, K., Björk, M. (2019). The lived experience of family life when one parent has deafblindness - from the perspective of the partner. Nordic Network on Disability Research (NNDR), 15th interdisciplinary conference in disability research, "Inclusion and Exclusion in the Welfare Society", May 8-10, 2019, Copenhagen, Denmark. More information
Anderzén Carlsson, A., Wahlqvist, M., Huus, K., Björk, M. (2019). The experience of family life when one parent has deafblindness - From the perspective of the partner. 17th Deafblind International World Conference, "Sharing the Knowledge to ACT: Accessibility. Communication. Technology", August 12-16, 2019, Gold Coast Australia. More information
Anderzén Carlsson, A., Wahlqvist, M., Björk, M., Huus, K. (2019). Health and family climate in families where one parent has deafblindness. 17th Deafblind International World Conference, "Sharing the Knowledge to ACT: Accessibility. Communication. Technology", August 12-16, 2019, Gold Coast Australia. More information
Gimbler Berglund, I., Huus, K., Enskär, K., Møller Christensen, B., Faresjö, M., Jacobsson, B. (2019). How do we care for children with Autism Spektrum Disorder when coming for a procedure requiring anesthesia?. INSAR 2019 Annual Meeting, Montreal, Canada, May 1-4, 2019. More information
Huus, K., Enskär, K. (2006). Living with diabetes type 1 from an adolescent's perspective. 62nd Nordic Congress of Radiology & 23rd Nordic Congress of Radiography. More information

Other publications

Elgmark Andersson, E., Huus, K., Sjöqvist, M., Granlund, M. . Participation restriction is not equal to low frequency of participation in children with  mild intellectual Disability. More information
Olsson, L., Bengtsson, S., Granlund, M., Huus, K., Elgmark Andersson, E., Kåreholt, I. . Integration of pupils with mild intellectual disability in mainstream school settings - goog or bad for social service utilisation? A longitudinal study among children with mild intellectual disability in Sweden. More information