Karta över internationella samarbeten

We have collaborated with researchers at the Centre for Augmentative & Alternative communication around children’s rights and participation in everyday life for children with disabilities. Together we have done a lot of studies where we validate and test the instrument Picture My Participation, and comparison between primary caregivers and children with and without disabilities have been conducted. Barriers and facilitators for participation have been studied and we have also since some years collaborate in teaching research ethics with a group of master students from South Africa and from Sweden.

Affiliations/roles

• Professor Juan Bornman, affiliated researcher to Jönköping University
• Assistant Professor Alecia Samuels, affiliated researcher to Jönköping University
• Professor Mats Granlund, Extraordinary Professor at University of Pretoria

For more information, contact Professor Karina Huus, karina.huus@ju.se

Collaboration around mental health screening and interventions for people with physical disabilities in Cambodia. After a pilot project was initiated the aim to access additional funding was successful to roll this initiative out on a larger scale.

For more information, contact Professor Nerrolyn Ramstrand, nerrolyn.ramstrand@ju.se

The common themes in our collaboration with Chang Gung University concern how participation in everyday life is related to children’s skills when they have impairments and also how children can report on their own participation and have their voices heard when planning interventions. In addition, we investigate how wellbeing is related to a child’s capacity to perform activities independently and to frequency of attending activities. We think that for wellbeing it is more important to attend activities frequently than to be able to perform the activities independently.

For more information, contact: Professor Mats Granlund, mats.granlund@ju.se

Collaboration around mental health screening and interventions for people with physical disabilities in Cambodia. After a pilot project was initiated the aim to access additional funding was successful to roll this initiative out on a larger scale.

For more information, contact Professor Nerrolyn Ramstrand, nerrolyn.ramstrand@ju.se

We collaborate with researchers and PhD students at the Nursing department about children with different kinds of disabilities such as children with intellectual disabilities, children with autism and children with long term health condition. The instrument Picture My Participation have been used to measure attendance and involvement with children with and without disabilities. Primary caregivers have also been answering the questionnaire and they have been interviewed about their experience of having a child with disabilities.

For more information, contact Professor Karina Huus, karina.huus@ju.se

Part of “Map I Am”, an Erasmus+ programme EACEA collaboration between 2021-2023 between the city of Vienna, Austria, with the PI Caroline Jäckl. Testing using ICF in the context of education rather than health, linking ICF to classroom assessment practices, and then emphasizing adaptations of the environment rather than body function.

EU Project id: 621435-EPP-1-2020-1-AT-EPPKA3-IPI-SOC-IN

For more information, contact Associate Professor Lilly Augustine, lilly.augustine@ju.se

We are collaborating with Department of Mental Health on a number of projects concerning mental health and children and adolescents in need of special support. One focus is on mental health in person who only can communicate about their mental health using Augmentative and Alternative Communication. Another focus is interventions for adolescents in difficult life circumstances and how family centered interventions might affect their circumstances and mental health Youth FACT. The program is developed in the Netherlands and is a collaborative model between the municipality and specialist services to provide comprehensive and locally based treatment. The target group is youth where standard outpatient treatment in the community and specialist health services are not able to provide sufficient care. These youths are out of school/ work, socially impaired, and struggle with self care caused by persistent and complex mental health problems including psychotic symptoms, anxiety, and substance use problems/disorders. Due to evolving symptoms during adolescence, the cause of severe impairment is often unknown, thus, inclusion criteria for Youth FACT are beyond diagnostic categories.

For more information, contact Professor Mats Granlund, mats.granlund@ju.se

Collaboration around mental health screening and interventions for people with physical disabilities in Cambodia. After a pilot project was initiated the aim to access additional funding was successful to roll this initiative out on a larger scale.

For more information, contact Professor Nerrolyn Ramstrand, nerrolyn.ramstrand@ju.se

Validation of the pain assessment tool, Faces Thermometer Scale (FTS), used within the Piccpecc application

Pictorial support in person-centered care for children (PicPecc) is a digital tool that can be used by children to self-report symptoms for example pain. Within PiccPecc, the child assesses the symptom by using the digital Faces Thermometer Scale (FTS). When translating a low-tech assessment tool to a digital format, the child’s perception of the pain assessment may differ. Therefore, we will in this study evaluate the validity and reliability of the newly developed digital Faces Thermometer Scale (FTS) tool for assessing children’s pain.

For more information, contact Associate Professor Maria Björk, maria.bjork@ju.se

Validation of the pain assessment tool, Faces Thermometer Scale (FTS), used within the Piccpecc application

Pictorial support in person-centered care for children (PicPecc) is a digital tool that can be used by children to self-report symptoms for example pain. Within PiccPecc, the child assesses the symptom by using the digital Faces Thermometer Scale (FTS). When translating a low-tech assessment tool to a digital format, the child’s perception of the pain assessment may differ. Therefore, we will in this study evaluate the validity and reliability of the newly developed digital Faces Thermometer Scale (FTS) tool for assessing children’s pain.

For more information, contact Associate Professor Maria Björk, maria.bjork@ju.se

We collaborate with Professor Luc Marks, Head of the Center of Dentistry and Oral Hygiëne, University Medical Center. Professor Marks’ major research interests are the treatment of Special Care patients including epidemiology and ethics. The collaboration is linked to our research program “Do adolescents with Down syndrome receive the dental health care they are entitled to?” In the collaboration we want to investigate whether adolescents with DS receive the dental health care they are entitled to, with special focus on orthodontics, and what factors influence decisions regarding dental health care and orthodontic treatment. This project have an inclusive research approach with Swedish adolescents, their parents and professionals. Our plans are to include participants from The Netherlands.

For more information, contact Assistant Professor Malin Stensson, malin.stensson@ju.se

Part of “Map I Am”, an Erasmus+ programme EACEA collaboration between 2021-2023 between the city of Vienna, Austria, with the PI Caroline Jäckl. Testing using ICF in the context of education rather than health, linking ICF to classroom assessment practices, and then emphasizing adaptations of the environment rather than body function.

EU Project id: 621435-EPP-1-2020-1-AT-EPPKA3-IPI-SOC-IN

For more information, contact Associate Professor Lilly Augustine, lilly.augustine@ju.se

The collaboration focuses on early childhood intervention and education; preschool practices and environments. In the EU-project “I am”, we focus on inclusion in preschool.

Part of “Map I Am”, an Erasmus+ programme EACEA collaboration between 2021-2023 between the city of Vienna, Austria, with the PI Caroline Jäckl. Testing using ICF in the context of education rather than health, linking ICF to classroom assessment practices, and then emphasizing adaptations of the environment rather than body function. EU Project id: 621435-EPP-1-2020-1-AT-EPPKA3-IPI-SOC-IN

We also work with children’s rights and participation in everyday life for children with disabilities or long-term health conditions. One project also concerns adaption and perception in education during the Covid 19 pandemic.

In Porto the instrument Picture My Participation have been used in a master thesis aimed to understand the participation of children attending preschool and primary school, during confinement due to COVID-19, according to their main caregivers. The instrument Picture My Participation have also been used with participants in a community project for young people with disabilities (to document their participation).

For more information, contact: Professor Eva Björck, eva.bjorck@ju.se, Associate Professor Lilly Augustine, lilly.augustine@ju.se, or Professor Karina Huus, karina.huus@ju.se

Part of “Map I Am”, an Erasmus+ programme EACEA collaboration between 2021-2023 between the city of Vienna, Austria, with the PI Caroline Jäckl. Testing using ICF in the context of education rather than health, linking ICF to classroom assessment practices, and then emphasizing adaptations of the environment rather than body function.

EU Project id: 621435-EPP-1-2020-1-AT-EPPKA3-IPI-SOC-IN

For more information, contact Associate Professor Lilly Augustine, lilly.augustine@ju.se

Steering the EU-project “Map I Am”, an Erasmus+ programme EACEA collaboration between 2021-2023 between the city of Vienna, Austria, with the PI Caroline Jäckl. Testing using ICF in the context of education rather than health, linking ICF to classroom assessment practices, and then emphasizing adaptations of the environment rather than body function.

EU Project id: 621435-EPP-1-2020-1-AT-EPPKA3-IPI-SOC-IN

For more information, contact Associate Professor Lilly Augustine, lilly.augustine@ju.se

Collaboration around mental health screening and interventions for people with physical disabilities in Cambodia. After a pilot project was initiated the aim to access additional funding was successful to roll this initiative out on a larger scale.

For more information, contact Professor Nerrolyn Ramstrand, nerrolyn.ramstrand@ju.se

Part of “Map I Am”, an Erasmus+ programme EACEA collaboration between 2021-2023 between the city of Vienna, Austria, with the PI Caroline Jäckl. Testing using ICF in the context of education rather than health, linking ICF to classroom assessment practices, and then emphasizing adaptations of the environment rather than body function.

EU Project id: 621435-EPP-1-2020-1-AT-EPPKA3-IPI-SOC-IN

For more information, contact Associate Professor Lilly Augustine, lilly.augustine@ju.se

Traditionally professionals have worked on the premise that if children are supported in developing new skills it will lead to increased participation in everyday life. This is however not always the fact. Researchers at McGill university investigate if it might be the other way around, by supporting participation in adolescents with impairments they will develop new skills and wellbeing. We collaborate on investigating how capacity building develops in such supportive interventions. What makes adolescents try out new activities based on what they have learned in the supportive intervention?

For more information, contact Professor Mats Granlund, mats.granlund@ju.se

Validation of the pain assessment tool, Faces Thermometer Scale (FTS), used within the Piccpecc application

Pictorial support in person-centered care for children (PicPecc) is a digital tool that can be used by children to self-report symptoms for example pain. Within PiccPecc, the child assesses the symptom by using the digital Faces Thermometer Scale (FTS). When translating a low-tech assessment tool to a digital format, the child’s perception of the pain assessment may differ. Therefore, we will in this study evaluate the validity and reliability of the newly developed digital Faces Thermometer Scale (FTS) tool for assessing children’s pain.

For more information, contact Associate Professor Maria Björk, maria.bjork@ju.se

In the beginning of the COVID-19 pandemic with all campuses worldwide started to shut down a project with Dana Donahue at Northern Arizona University US, regarding university personnel and students regarding their adjustment to COVID-19: Perceptions of stress, creativity and online education among teachers and students in higher education locally and globally. This is an international project with countries worldwide: Canada, Lithuania, South Africa, and Pakistan, in order to compare both national and international at university level.

For more information, contact Associate Professor Lilly Augustine, lilly.augustine@ju.se

We collaborate with researchers at School of Nursing at UNC around caring behavior and everyday life for children and families. The collaboration is linked to different research projects e.g. support to children who have ended brain tumor treatment, Children with Down syndrome and oral health, nursing student’s caring behavior, overweight children with overweight parents and education about undoing racism. We think that a caring behavior and enhancing children’s participation in everyday life contribute to health and wellbeing.

We also collaborate with the School of Education and Social Work around Early Childhood Intervention and the health classification system ICF.

Roles/Affiliations
Professor Rune Simeonsson is affiliated the School of Education and Communication at JU.

For more information, contact Associate Professor Maria Björk, maria.bjork@ju.se

Collaboration is focusing on play and preschool environments.

For more information, contact: Professor Eva Björck, eva.bjorck@ju.se

We collaborate around pre-school practices, early childhood interventions and participation in everyday activities for children with disabilities.

For more information, contact: Professor Eva Björck, eva.bjorck@ju.se

We collaborate with the research group CARG at Perth University around inclusive research strategies aimed at involving people with impairments to be fellow researchers in projects that concern them. The group at Curtain has developed a manual for how to support the active participation of persons with autism in researchers in research. This manual for inclusive research developed by CARG has been translated to Swedish and adapted to be used with youth with impairments and their care providers when participating as fellow researchers in CHILD projects

For more information, contact Assistant Professor Malin Stensson, malin.stensson@ju.se

We collaborate with Professor Christine Imms’ team at Melbourne University around participation, wellbeing and mental health problems for children, youth and young adults with impairments. The collaboration is linked to one research program in Sweden, and one research program in Australia. In the collaboration we investigate the longitudinal relations between participation, wellbeing, and mental health problems. We aim to support participation in everyday activities for persons with impairments. We think that high participation can promote wellbeing and protect from mental health problems. Based on the results we develop interventions.

Affiliations/roles

Mats Granlund is an Associate Researcher at Melbourne University

For more information, contact Professor Mats Granlund, mats.granlund@ju.se